DOME

Publications and Materials

Journal papers

2025
2024
2023
2022
2021
2020-2016
2015-2012

2025

2024

  • Hägglund M, Kharko A, Bärkås A, Blease C, Cajander Å, DesRoches C, Fagerlund A, Hagström J, Huvila I, Hörhammer I, Kane B, Klein G, Kristiansen E, Moll J, Muli I, Rexhepi H, Riggare S, Ross P, Scandurra I, Simola S, Soone H, Wang B, Ghorbanian Zolbin M, Åhlfeldt RM, Kujala S, Johansen MA. (2024). Nordic Perspective on Patient Online Record Access and the European Health Data Space. J Med Internet Res 2024;26:e49084, doi: 10.2196/49084

2023

  • Premanandan S, Ahmad A, Cajander Å, Ågerfalk P, van Gemert-Pijnen L. (2023). Designing and evaluating IT applications for informal caregivers: protocol for a scoping review. JMIR research protocols, 12(1), e47650.

2022

  • Langegård, U., Cajander, Å., Carlsson, M., von Essen, L., Ahmad, A., Laurell, G., … & Johansson, B. (2022). Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention. BMJ open, 12(5), e057442.

2021

2020

  • Bjerkan J, Kane B, Uhrenfeldt L, Veie M, Fossum M, (2020). Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review. JMIR research protocols, 9(8), p. e16781.

2019

2018

  • Huvila I, Enwald H, Eriksson-Backa K, Hirvonen N, Nguyen T, Scandurra I. (2018). Anticipating Aging: Older Adults Reading Their Medical Records. Information Processing & Management, 54:3, 394-407. May 2018. doi: 10.1016/j.ipm.2018.01.007
  • Grünloh C, Myreteg G, Cajander Å, Rexhepi H. (2018) “Why Do They Need to Check Me?” Patient Participation Through eHealth and the Doctor-Patient Relationship: Qualitative Study. Journal of Medical Internet Research 20, 1, e11. doi: 10.2196/jmir.8444
  • Rexhepi H, Åhlfeldt RM, Cajander Å, Huvila I. (2018). Cancer patients’ attitudes and experiences of online access to their electronic medical records: A qualitative study. Health Informatics Journal. 115-124. doi: 10.1177/1460458216658778

2017

  • Scandurra I, Jonsson A, Forsberg Fransson ML, Ålander T. (2017) Patient Accessible EHR is Controversial: Lack of Knowledge and Diverse Perceptions Among Professions. International Journal of Reliable and Quality E-Healthcare, 6(1). doi: 10.4018/IJRQEH.2017010103.

2016

  • Huvila I, Daniels M, Cajander Å, Åhlfeldt RM. (2016). Patients Reading their Medical Records: Differences in experiences and attitudes between regular and inexperienced readers. Information Research, 21(1 706). ISSN 1368-1613, E-ISSN 1368-1613.

2015

  • Myreteg G. (2015) Cost-benefit evaluation of e-health services: acceptance and value creation are interactive forces. Health Systems, 4(3), 204-211.
  • Erlingsdóttir G & Lindholm C. (2015). When patient empowerment encounters professional autonomy: The conflict and negotiation process of inscribing an eHealth service. Scandinavian Journal of Public Administration, 19(2), 27-48.
  • Huvila I, Cajander Å, Daniels M, Åhlfeldt RM. (2015). Patients’ perceptions of their medical records from different subject positions. Journal of the Association for Information Science and Technology, 66(12), 2456–2470. doi: 10.1002/asi.23343

2014

  • Scandurra I, Hägglund M, Persson A, Åhlfeldt RM. (2014). Disturbing or Facilitating? On the Usability of Swedish eHealth Systems 2013 in eHealth – For Continuity of Care, eds. C. Lovis et al. Stud Health Technol Inform. 2014;205:221-5.
  • Janols R, Lind T, Göransson B, Sandblad B. (2014). Evaluation of user adoption during three module deployments of region-wide electronic patient record systems. International Journal of Medical Informatics, 83(6), 438-449.
  • Holgersson J & Karlsson K. (2014). Public e-service development: understanding citizens’ conditions for participation. Government Information Quarterly.

2013

  • Huvila I, Myreteg G, Cajander Å. (2013). Empowerment or anxiety? Research on deployment of online medical E-health services in Sweden, Bulletin of ASIS&T 39(5), 30–33.
  • Scandurra I, Holgersson J, Lind T, Myreteg G. (2013). Development of patient access to electronic health records as a step towards ubiquitous public eHealth. European Journal of ePractice, 20, 21-36.
  • Scandurra I & Sjölinder M. (2013). Participatory design with seniors: Design of future services and iterative refinements of interactive eHealth Services for old citizens. Med 2.0 2(2):e12.

2012

  • Jonnergård K & Erlingsdóttir G. (2012). Variations in profession’s adoption of quality reforms, the case of auditors and doctors in Sweden. Journal of Current Sociology, 60 (2).

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Conference contributions

2025
2024
2023
2022
2020-2016
2015-2011

2025

  • Hägglund M, Scott Duncan T, Hagström J, Kujala S, Dudkina A, Moll J, Kharko A, Johansen MA, Blease C. Adult Proxy Online Record Access – Differences Across Four Countries. Stud Health Technol Inform. 2025 Oct 2;332:216-220. doi: 10.3233/SHTI251530. PMID: 41041777.
  • Sving, C., & Cajander, Å. From Medication Experts to System Navigators: Exploring Pharmacists’ EHR Challenges and Opportunities. Stud Health Technol Inform. 2025, 327, 672-676.
  • Hägglund M, Rexhepi H, Blease C, Hagström J, Kharko A. Cancer Patients’ Sharing of Electronic Health Records with Informal Caregivers. Stud Health Technol Inform. 2025 Aug 7;329:1291-1295. doi: 10.3233/SHTI251047.
  • Kharko A, Hagström J, Simola S, Cajander Å, Blease C, Hägglund M. The Gender Gap in EHR Experiences and Preferences: Results from an International Cross-Sectional Survey of Patients. Stud Health Technol Inform. 2025 May 15;327:939-943. doi: 10.3233/SHTI250510.
  • Hagström J, Blease C, Harila A, Hägglund M. (2025). Protecting Confidentiality in Online Records of Minors at Risk of Harm: Experiences in Pediatric Oncology Care. Stud Health Technol Inform. 327:929-933. doi: 10.3233/SHTI250508.
  • Luckhaus J, Riggare S, Kharko A, Blease C, Hägglund M, Scott Duncan T. (2025). Co-Designing a “win-win” in Predictive AI: First Results from Interviews and Focus Groups with Persons with Parkinson’s Disease. Stud Health Technol Inform. 327:263-267. doi: 10.3233/SHTI250325.

2024

  • Premanandan S., Ahmad, A., & Cajander, Å. (2024). Digital Inertia: A Qualitative Study with a Caregiver Association Network About Informal Caregivers’ Non-Use of IT Applications. In 34th Medical Informatics Europe Conference, MIE 2024, Athens, Greece, 25–29 August, 2024 (pp. 166-170). IOS Press.
  • Hagström J, Blease C, Moll J, Rexhepi H, Scandurra I, Hägglund M. Adolescents’ and Young Adults’ Experiences of Offense from Reading Their Health Records Online. In: Bichel-Findlay J, Otero P, Scott P, Huesing E, eds. Studies in Health Technology and Informatics. Vol 310. IOS Press; 2024:1422-1423. doi:10.3233/SHTI231225
  • Ahmad A, Premanandan S, Cajander Å, Langegård U, Uereten E, Tiblom Ehrsson Y. (2024). A Qualitative Study with Informal Caregivers and Healthcare Professionals for Individuals with Head and Neck Cancer on the Usage of AI Chatbots. Stud Health Technol Inform.

2023

  • Richardson, I., Ahmad, B., Premanandan, S., Doody, O., Beecham, S., Ouhbi, S., … & Cajander, Å. (2023). Generic Requirements for Inclusive Healthcare Software: Supporting Older Adults and People with Intellectual and Developmental Disability. In 2023 IEEE 31st International Requirements Engineering Conference Workshops (REW) (pp. 423-431). IEEE.
  • Premanandan, S., Ahmad, A., Cajander, Å., & Ågerfalk, P. (2023). Designing a persuasive E-coaching application for informal caregivers. In Caring is Sharing–Exploiting the Value in Data for Health and Innovation (pp. 922-926). IOS Press.

2022

2020

  • Alaqra, A.S. & Kane, B., 2020, July. Wearable Devices and Measurement Data: An Empirical Study on eHealth and Data Sharing. In 2020 IEEE 33rd International Symposium on Computer-Based Medical Systems (CBMS) (pp. 443-448). IEEE.
  • Rexhepi H, Moll J, Huvila I, Åhlfeldt RM. (2020). Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. Proceedings of the Eighteenth International Symposium for Health Information Management Research (Kalmar, Sweden, September 17-18). pp. 169-178.

2019

2018

2017

  • Scandurra I, Pettersson M, Hägglund M. (2017) When do people read their health record? – Analysis of usage data of a national eHealth service giving patients access to their Electronic Health Record. Poster paper in Informatics for health: Connected Citizen-Led Wellness and Population Health (MIE2017) Vol 235. Manchester, UK, April 2017 ISBN online: 978-1-61499-753-5

2016

  • Cajander Å, Grünloh C, Lind T, Scandurra I. (2016) Designing eHealth Services for Patients and Relatives: Critical Incidents and Lessons to Learn. Workshop at the 9th Nordic Conference on Human-Computer Interaction, NordiCHI 2016, Oct 23-27, Gothenburg, Sweden.
  • Moll J. (2016). Making a case for easily accessible electronic health records – A patient perspective on lack of availability of health information in critical situations. Workshop on Designing E-Health Services For Patients & Relatives – Critical Incidents and Lessons to Learn, NordiCHI 2016 (Göteborg, Sweden, October 2016).
  • Rexhepi H, Grünloh C, Cajander Å, Scandurra I. (2016). “Please Do Not Confuse Your Google Search With My Medical Degree”?! How Accessing EHRs and Google can Support Information Needs and Increase Understanding for Patients and Relatives. Position paper in NordiCHI’16, Gothenburg, October 2016. Accessible here.
  • Scandurra I, Lyttkens L, Eklund B. (2016) Implications of Swedish National Regulatory Framework of the Patient Accessible Electronic Health Record. Oral Presentation. Medical Informatics Europe (MIE 2016), in conjunction with Health – Exploring Complexity: An Interdisciplinary Systems Approach (HEC 2016), August 28 – September 2, Munich, Germany.
  • Grünloh C, Rexhepi H, Cajander Å, Åhlfeldt RM, Myreteg G, Huvila I. (2016). Patient Empowerment Meets Concerns for Patients – a Study of Patient Accessible Electronic Health Records in Sweden. Oral Presentation. Medical Informatics Europe (MIE 2016), in conjunction with Health – Exploring Complexity: An Interdisciplinary Systems Approach (HEC 2016), August 28 – September 2, Munich, Germany. In: Health—exploring complexity: an interdisciplinary systems approach HEC2016, Eva Grill, Martin Müller, and Ulrich Mansmann (Eds.). Vol. 31. S71. DOI: 10.1007/s10654-016-0183-1

2015

  • Scandurra I & Ålander T. (2015) Registered Nurses’ Opinions of Patient Access to Electronic Health Records in Sweden – a Nationwide Survey. Oral presentation. Medicine 2.0: Social Media, Mobile Apps, and Internet/Web 2.0 in Health, Medicine and Biomedical Research, October 9-10, Malaga, Spain.
  • Ålander T & Scandurra I. (2015). Experiences of Healthcare Professionals to the Introduction in Sweden of a Public eHealth Service: Patients’ Online Access to their Electronic Health Records. MEDINFO 2015: eHealth-enabled Health, The 15th World Congress on Health and Biomedical Informatics, August 19-23, São Paulo City, Brazil
  • Scandurra I & Ålander T. (2015). Is Access to eHealth Records Important for Patients? – Opinions of Healthcare Personnel. Poster paper in Medinfo2015: eHealth – enabled Health, The 15th World Congress on Health and Biomedical Informatics, August 19-23, São Paulo city, Brazil, Stud Health Technol Inform. 216:908 ISBN online: 978-1-61499-564-7. DOI 10.3233/978-1-61499-564-7-908.
  • Rexhepi H, Åhlfeldt RM, Cajander Å Huvila I. (2015). Cancer Patients’ Attitudes and Experiences of Online Medical Records. Proceedings of the 17th International Symposium on Health Information Management Research (ISHIMR 2015), 24-26 June 2015 (pp. 19-25) York, UK. ISSN 2048-4712 (Print).
  • Erlingsdottir G, Lindholm C, Sandberg H. (2015). Media and Transgression: International conference. Lund University. 
  • Rexhepi H. (2015) Supporting Evidence Based Medicine – A Prototype for Future Healthcare Information Systems. Proceedings of the 8th IADIS International Conference on Information Systems 2015, March 14–16, Madeira, Portugal.

2014

  • Ålander T, Åhlfeldt, RM, Huvila I. (2014) Experiences of a Patient Portal with Access During 9 Years to the Medical Records, in Primary Care. Poster. Medicine 2.0: Social Media, Mobile Apps, and Internet/Web 2.0 in Health, Medicine and Biomedical Research, October 9-10, Malaga, Spain.
  • Erlingsdottir G, Lindholm C, Ålander T. (2014). eHealth services, patient empowerment and professional accountability. An empirical study on the changing patient doctor relationship in the digital world,  paper for the International EIASM Public Sector Conference in Edinburgh, 2-4 September 2014.
  • Cajander Å, Janols R, Eriksson E. (2014). On the Establishment of User-Centred Perspectives. Proceedings of the 8th Nordic Conference on Human-Computer Interaction, NordiCHI 2014, October 23-27. Helsinki, Finland.
  • Larusdottir M, Cajander Å, Simader M. (2014). Continuous Improvement in Agile Development Practice – The Case of Value and Non-Value Adding Activities. HCSE 2014, September 16-18, Paderborn, Germany.
  • Åhlfeldt RM & Huvila I. (2014). Patient Safety and Patient Privacy When Patient Reading Their Medical Records, in Kaija Saranto; Maaret Castrén; Tiina Kuusela; Sami Hyrynsalmi & Stina Ojala, ed., Safe and Secure Cities : 5th International Conference on Well-Being in the Information Society, WIS 2014. Turku, Finland, August 18-20, 2014, Proceedings, Springer, Heidelberg, pp. 230-239.
  • Holgersson J & Söderström E. (2014). Experiences from and attitudes towards applying user participation in public e-service development. Accepted to the 10th International Conference on Web Information Systems and Technologies (WEBIST).
  • Scandurra I, Åhlfeldt RM, Cajander Å. (2014). Towards National Deployment of Online Medical Records and eHealth Services. ePublished in “Vitalis14 PReP? (gupea.ub.gu.se).

2013

  • Scandurra I & Sjölinder M. (2013). The Digital Seniors – Interactive eHealth Service Development with Old Citizens. In proceedings of the Medicine 2.0-13 Congress, London.
  • Cajander Å, Larusdottir M, Gulliksen J. (2013). Existing but not Explicit – The User Perspective in Scrum Projects in Practice. INTERACT, Cape Town, South Africa.
  • Scandurra I, Åhlfeldt RM, Persson A, Hägglund M. (2013). Challenges in applying a Participatory Approach in a Nation-wide project – The case of Usability of Swedish eHealth Systems 2013 in Proceedings of Past History and Future Challenges of Human Work Interaction Design (HWID) INTERACT workshop 2013 – 14th IFIP TC13, Cape Town, South Africa, p 34-39. ISBN: 978-620-58037-3
  • Scandurra I, Holgersson J, Lind T, Myreteg G. (2013). Development of Novel eHealth Services for Citizen Use – Current System Engineering vs. Best Practice in HCI. In INTERACT 2013 LNCS Proceedings, Cape Town, South Africa.
  • Erlingsdottir G & Lindholm C. (2013). “Because we can! Deployment of eHealth services in Uppsala County”. NFF (Nordic association of business administration) conference in Reykjavik.
  • Scandurra I, Hägglund M, Åhlfeldt RM. (2013). Experiences of Novel e-Health Services for Patients – Pros, Cons and Future Challenge. Accepted proposal for workshop in Medinfo 2013. Copenhagen, Denmark.
  • Huvila I, Daniels M, Åhlfeldt RM, Cajander, Å. (2013). Experiences and Attitudes of Patients Reading their Medical Records differences between readers and recurrent readers. Information: Interactions and Impact, Aberdeen.
  • Ålander T & Hamne A. (2013). Patients reading their medical records online – implications for the doctor. WONCA World conference in Prague, Oral presentation.
  • Ålander T. (2013). Doctors opinions of patients’ online access to their electronic medical records. WONCA World conference in Prague, Poster presentation.
  • Åhlfeldt RM, Krasniqi H, Persson A. (2013). Supporting Active Patient and Healthcare Collaboration – A Prototype for Future Healthcare Information Systems. Submitted to the 16th International Symposium on Health Information Management Research (ISHIMR 2013). Halifax, Canada.
  • Scandurra I, Åhlfeldt RM, Persson A, Hägglund M. (2013). Building Usability into National eHealth Strategies, an Action Research Approach. In proceedings of the 4th-international workshop on Infrastructures for Healthcare: Action Research, Intervention and Particpatory Design 2013. Tromsö, Norway.
  • Huvila I & DOME project. (2013). Deployment of Online Medical Records and e-Health Services. ASIS&T European Workshop, Åbo.

2012

  • Holgersson J & Karlsson F. (2012). Understanding business employees’ conditions for participating in public e-service development. ECIS 2012 Proceedings, paper 24, Barcelona, Spain.
  • Hägglund M, Scandurra I, Koch S. (2012). Supporting Citizen-centred Care for Seniors – Experiences from Two Swedish Research Projects In Proceedings of 25th IEEE International Symposium on Computer-Based Medical Systems (CBMS).

2011

  • Holgersson J & Karlsson F. (2011). Exploring citizens’ possibilities to participate in public e-service development, In Janssen et al. (eds.), In the joint proceedings of Ongoing Research and Projects of IFIP EGOV and ePart 2011, Delft, The Netherlands, pp. 83-91.
  • Krasniqi H, Åhlfeldt RM, Persson A. (2011). Patients’ experiences of communicating with healthcare – an information exchange perspective. In Proceedings of the 15th International Symposium for Health Information management Research (ISHIMR 2011), Zurich, pp. 241-251, ISBN 978-0-9559283-1-4.

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Theses

Other publications

  • Cajander Å & Åhlfeldt RM. (2016) Journal via nätet– delaktighet för patienterna och oro hos personalen. Fridholm & Partners, June 2016.
  • Scandurra I. (2013). eHälsosystemens användbarhet 2013, Rapport på uppdrag av Socialdepartementet, available as of 14 June 2013. [pdf]
  • Lyttkens L. SUSTAINS Intermediate trial evaluation – Uppsala, Report D6.1 v1.1, 14 Jan 2014. SUSTAINS rapport

Presentations and Workshops

No longer reported after 2022

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