Journal papers

• Kujala S, Hörhammer I, Väyrynen A, Holmroos M, Nättiaho-Rönnholm M, Hägglund M, Johansen MA. (2022) Patients’ Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey J Med Internet Res 2022;24(6):e37438
• Hagström, J., Blease, C., Haage, B., Scandurra, I., Hansson, S., Hägglund, M. (2022). Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review JMIR Research Protocols 11 (6), e36158
• Hägglund, M., Scandurra, I. (2022) Usability of the Swedish Patient Accessible Electronic Health Record: Qualitative Survey Study, JMIR Human Factors 9 (2), e37192

• Hägglund M, Cajander Å, Rexhepi H and Kane B (2022) Editorial: Personalized Digital Health and Patient-Centric Services. Front. Comput. Sci. 4:862358. doi: 10.3389/fcomp.2022.862358
• Schwarz, J., Bärkås, A., Blease, C., Collins, L., Hägglund, M. et al.(2021). Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review.JMIR Mental Health, 8(12): e34170-e34170
• Bärkås, A., Scandurra, I., Rexhepi, H., Blease, C., Cajander, Å. et al.(2021). Patients’ Access to Their Psychiatric Notes: Current Policies and Practices in Sweden. International Journal of Environmental Research and Public Health, 18(17)
• Blease, C., Kharko, A., Hägglund, M., O’Neill, S., Wachenheim, D. et al.(2021). The benefits and harms of open notes in mental health: A Delphi survey of international experts. PLOS ONE, 16(10)
• Hägglund, M., Scandurra, I.(2021). User Evaluation of the Swedish Patient Accessible Electronic Health Record: System Usability Scale. JMIR Human Factors, 8(3)
• Blease, C., Salmi, L., Hägglund, M., Wachenheim, D., DesRoches, C.(2021). COVID-19 and Open Notes: A New Method to Enhance Patient Safety and Trust..JMIR mental health, 8(6)
• Riggare, S., Hägglund, M., Bredenoord, A., de Groot, M., Bloem, B. (2021). Ethical Aspects of Personal Science for Persons with Parkinson’s Disease: What Happens When Self-Tracking Goes from Selfcare to Publication? Journal of Parkinson’s Disease, IOS Press. Preprint: 1-7
• Cijvat, C., Cornet, R., Hägglund, M. (2021). Factors Influencing Development and Implementation of Patients’ Access to Electronic Health Records: A Comparative Study of Sweden and the Netherlands.Frontiers In Public Health, 9
• Blease C, Salmi L, Rexhepi H, Hägglund M, DesRoches C. Patients, clinicians and open notes: information blocking as a case of epistemic injustice Journal of Medical Ethics Published Online First: 14 May 2021. doi: 10.1136/medethics-2021-107275
• Blease, C., Torous, J., Kharko, A., DesRoches, C., Harcourt, K., O’Neill, S., Salmi, L., Wachenheim, D., Hägglund M.(2021). Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts. JMIR mental health, 8(4)
• Blease, C., Dong, Z., Torous, J., Walker, J., Hägglund, M. et al.(2021). Association of Patients Reading Clinical Notes With Perception of Medication Adherence Among Persons With Serious Mental Illness. JAMA network open, 4(3)
• Blease, C., O’Neill, S., Torous, J., DesRoches, C., Hägglund, M.(2021). Patient Access to Mental Health Notes: Motivating Evidence-Informed Ethical Guidelines. Journal of Nervous and Mental Disease, 209(4): 265-269
• Riggare, S., Stamford, J., Hägglund, M.(2021). A Long Way to Go: Patient Perspectives on Digital Health for Parkinson’s Disease. Journal of Parkinson’s Disease Epub ahead of print
• Salmi, L., Blease, C., Hägglund, M., Walker, J., DesRoches, C.(2021). US policy requires immediate release of records to patients.BMJ. British Medical Journal, 372
• Blease, C., Delbanco, T., Torous, J., Ponten, M., DesRoches, C., Hägglund, M., Walker, J., Kirsch, I. (2020). Sharing clinical notes, and placebo and nocebo effects: Can documentation affect patient health? Journal of Health Psychology
• Bjerkan, J., Kane, B., Uhrenfeldt, L., Veie, M. and Fossum, M., 2020. Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review. JMIR research protocols, 9(8), p.e16781.
• Blease, C., Torous, J., Hägglund, M.(2020). Does Patient Access to Clinical Notes Change Documentation? Frontiers In Public Health, 8:577896.
• Nurgalieva, L., Cajander, Å., Moll, J., Åhlfeldt, R-M., Huvila, I., and Marchese, M. (2020). ‘I do not share it with others. No, it’s for me, it’s my care’: On sharing of patient accessible electronic health records. Health Informatics Journal. DOI: 10.1177/1460458220912559.
• Rexhepi, H., Moll, J., and Huvila, I. (2020). Online electronic healthcare records: Comparing the views of cancer patients and others. Health Informatics Journal. DOI: 1460458220944727.
• Blease CR, O’Neill S, Walker J, Hägglund M, Torous J. (2019) Sharing notes with mental health patients: balancing risks with respect. Comment in The Lancet Psychiatry. 
• Hägglund, M., DesRoches C., Petersen C., Scandurra I. (2019) Patients’ access to health records. Editorial the BMJ, October 2019.
• Moll J, Cajander Å. (2019) Oncology health-care professionals’ perceived effects of patient accessible electronic health records 6 years after launch: A survey study at a major university hospital in Sweden Health Informatics Journal 19 October 2019
• Davoody N, Koch S, Krakau I, Hägglund M. (2019) Accessing and sharing health information for post-discharge stroke care through a national health information exchange platform-a case study
  BMC medical informatics and decision making 19 (1), 95
• Essen A, Scandurra I, Gerrits, R, Humphrey, G, Johanssen MA, Kierkegaard P, Koskinen J, Liaw ST, Odeh S, Ross P, Ancker J. (2018). Patient Access to Electronic Health Records: Differences Across Ten Countries, Health Technology and Policy, 2018;vol 7:1 44-56, March 2018. https://doi.org/10.1016/j.hlpt.2017.11.003
• Huvila I, Enwald H, Eriksson-Backa K, Hirvonen N, Nguyen T, Scandurra I. (2018). Anticipating Aging: Older Adults Reading Their Medical Records.  Information Processing & Management, 54:3, 394-407. May 2018  DOI: 10.1016/j.ipm.2018.01.007
• Moll J, Rexhepi H, Cajander Å, Grünloh C, Huvila I, Hägglund M, Myreteg G, Scandurra I, Åhlfeldt RM.  (2018). Patients’ experiences of accessing their electronic health records: National patient survey in Sweden. J Med Internet Res 2018;20(11):e278
• Grünloh, C., Myreteg, G., Cajander, Å., Rexhepi, H. (2018) “Why Do They Need to Check Me?” Patient Participation Through eHealth and the Doctor-Patient Relationship: Qualitative Study. Journal of Medical Internet Research 20, 1, e11. DOI: 10.2196/jmir.8444
• Åkerstedt, U., Cajander, Å., Moll, J., & Ålander, T. (2018). On threats and violence for staff and patient accessible electronic health records. Cogent Psychology 5(1): 1-11.
• Scandurra, I., Jonsson, A., Forsberg Fransson, M-L. & Ålander, T. (2017) Patient Accessible EHR is Controversial: Lack of Knowledge and Diverse Perceptions Among Professions. International Journal of Reliable and Quality E-Healthcare,  6(1). DOI: 10.4018/IJRQEH.2017010103.
• Scandurra I, Pettersson M, Eklund B, Lyttkens L. (2017)Analysis of the Updated Swedish Regulatory Framework of the Patient Accessible Electronic Health Record in Relation to Usage Experience. Stud Health Technol Inform 2017;245:798-802 http://ebooks.iospress.nl/volumearticle/48261
• Huvila, I., Daniels, M., Cajander, Å. & Åhlfeldt, R-M. (2016). Patients Reading their Medical Records: Differences in experiences and attitudes between regular and inexperienced readers. Information Research, 21(1 706). ISSN 1368-1613, E-ISSN 1368-1613.
• Grünloh, C., Cajander, Å. & Myreteg, G. (2016) The Record is Our Work Tool!—Physicians’ Framing of a Patient Portal in Sweden. J Med Internet Res 2016;18(6):e167, URL: http://www.jmir.org/2016/6/e167/ DOI: 10.2196/jmir.5705 PMID: 27349531.
• Rexhepi H, Åhlfeldt R-M, Cajander Å, Huvila I. Cancer patients’ attitudes and experiences of online access to their electronic medical records: A qualitative study. Health Informatics Journal. June 2018:115-124. doi:10.1177/1460458216658778
• Myreteg, G. (2015) Cost-benefit evaluation of e-health services: acceptance and value creation are interactive forces. Health Systems, 4(3), 204-211.
• Scandurra, I., Jansson, A., Forsberg-Fransson, M-L. & Ålander T. (2015) Is ‘online patient access to health records’ a good reform? – Opinions from Swedish healthcare professionals differ. Accepted 2015-08-20. Procedia Computer Science, Volume 64, Pages 964-968. PROCS6824. PII: S1877-0509(15)02749-0 DOI: 10.1016/j.procs.2015.08.614. http://www.sciencedirect.com/science/article/pii/S1877050915027490.
• Ålander, T. & Scandurra I. (2015) Experiences of Healthcare Professionals to the Introduction in Sweden of a Public eHealth Service: Patients’ Online Access to their Electronic Health Records. in eHealth – enabled Health, eds Sakar IN, Georgiou A, Mazzoncini de Azevedo Marques P. Stud Health Technol Inform. 2015;216:153-57 ISBN online: 978-1-61499-564-7. DOI: 10.3233/978-1-61499-564-7-153.
• Erlingsdóttir, G. & Lindholm, C. (2015) When patient empowerment encounters professional autonomy: The conflict and negotiation process of inscribing an eHealth service. Scandinavian Journal of Public Administration, 19(2), 27-48.
• Huvila, I., Cajander, Å., Daniels, M. & Åhlfeldt, R.-M. (2015). Patients’ perceptions of their medical records from different subject positions. Journal of the Association for Information Science and Technology, 66(12), 2456–2470. doi: 10.1002/asi.23343
• Scandurra, I., Hägglund, M., Persson, A., Åhlfeldt, R.-M. (2014). Disturbing or Facilitating? On the Usability of Swedish eHealth Systems 2013 in eHealth – For Continuity of Care, eds. C. Lovis et al. Stud Health Technol Inform. 2014;205:221-5.
• Janols, R., Lind, T., Göransson, B., & Sandblad, B. (2014). Evaluation of user adoption during three module deployments of region-wide electronic patient record systems. International Journal of Medical Informatics, 83(6), 438-449.
• Holgersson, J. & Karlsson, K. (2014). Public e-service development: understanding citizens’ conditions for participation. Government Information Quarterly.
• Huvila, I., Myreteg, G. & Cajander, Å. (2013). Empowerment or anxiety? Research on deployment of online medical E-health services in Sweden, Bulletin of ASIS&T 39(5), 30–33.
• Scandurra, I., Holgersson, J., Lind, T. & Myreteg, G. (2013). Development of patient access to electronic health records as a step towards ubiquitous public eHealth. European Journal of ePractice, 20, 21-36.
• Larusdottir, M., Cajander, Å. & Gulliksen, J. (2013). Informal Feedback Rather than Performance Measurements – User Centred Evaluation in Scrum Projects. To appear in Behaviour and Information Technology.
• Scandurra, I., Sjölinder, M. (2013) Participatory design with seniors ? Design of future services and iterative refinements of interactive eHealth Services for old citizens. Med 2.0 2013;2(2):e12.
• Jonnergård, K. & Erlingsdóttir, G. (2012). Variations in profession’s adoption of quality reforms, the case of auditors and doctors in Sweden. Journal of Current Sociology, 60 (2).

Conference contributions

• Hagström J, Scandurra I, Moll J, Blease C, Haage B, Hörhammer I, Hägglund M. Minor and Parental Access to Electronic Health Records: Differences Across Four Countries. Stud Health Technol Inform. 2022 May 25;294:495-499. doi: 10.3233/SHTI220508. PMID: 35612129.
• Bärkås A, Hägglund M, Moll J, Cajander Å, Rexhepi H, Hörhammer I, Blease C, Scandurra I. Patients’ Access to Their Psychiatric Records – A Comparison of Four Countries. Stud Health Technol Inform. 2022 May 25;294:510-514. doi: 10.3233/SHTI220511. PMID: 35612132.
• Muli I, Scandurra I, Cajander Å, Hägglund M.(2022) Healthcare Professionals’ Experiences of the Work Environment After Patients’ Access to Their Electronic Health Records – A Qualitative Study in Primary Care. Stud Health Technol Inform. 294:530-534. doi: 10.3233/SHTI220515. 
• Alaqra, A.S. and Kane, B., 2020, July. Wearable Devices and Measurement Data: An Empirical Study on eHealth and Data Sharing. In 2020 IEEE 33rd International Symposium on Computer-Based Medical Systems (CBMS) (pp. 443-448). IEEE.
• Hägglund, M., Blease, C., Scandurra, I. (2020). Mobile Access and Adoption of the Swedish National Patient Portal. Studies in Health Technology and Informatics, 275: 82-86
• Hägglund, M., Helsing, E., Scandurra, I.(2020). Personalized Communication – People with Hearing Loss’ Experiences of Using a National Patient Portal. Studies in Health Technology and Informatics, 270: 1031-1035
• Moll, J., and Cajander, Å. (2020). On Patient Accessible Electronic Health Records and the Experienced Effect on the Work Environment of Nurses. Studies in Health Technology and Informatics (Vol. 270). pp. 1021-1025.
• Moll, J., and Rexhepi, H. (2020). The Effect of Patient Accessible Electronic Health Records on Communication and Involvement in Care-A National Patient Survey in Sweden. Studies in Health Technology and Informatics (Vol. 270). pp. 1056-1060.
• Rexhepi, H., Moll, J., Huvila, I., and Åhlfeldt, RM. (2020). Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health. Proceedings of the Eighteenth International Symposium for Health Information Management Research (Kalmar, Sweden, September 17-18). pp. 169-178.
• Bärkås A, Scandurra I, Hägglund M. (2019) Analysis of Voluntary User Feedback of the Swedish National PAEHR Service.  Studies in Health Technology and Informatics 264: 1126-1130.
• Þorsteinsdóttir, G. and Kane, B., 2018, June. Health information seeking among young adults in Sweden. In 2018 IEEE 31st International Symposium on Computer-Based Medical Systems (CBMS) (pp. 262-267). IEEE.
• Cajander, Å., Moll, J., Englund, S., & Hansman, A. (2018). Medical Records Online for Patients and Effects on the Work Environment of Nurses. Studies in Health Technology and Informatics 247: 271-275.
• Þorsteinsdóttir, G. & Kane, B. Health information seeking among young adults in Sweden.  31st International Symposium on IEEE Computer-Based Medical Systems (CBMS), June 18 – 21 2018 Karlstad, Sweden. IEEE, 262- 267. URL:  https://ieeexplore.ieee.org/abstract/document/8417248
• Huvila, I., Eriksson-Backa, K., Moll, J., Myreteg, G., and Hägglund, M. (2018). Differences in the experiences of reading medical records online: Elderly, Older and Younger Adults compared. Conference paper published in Informaatiotutkimus (Vol 37, No 3). pp. 51–54.
• Huvila, I., Moll, J., Enwald, H., Hirvonen, N., Åhlfeldt, R-M., and Cajander, Å. (2018). Age-related differences in seeking clarification to understand medical record information. Proceedings of the 12th ISIC conference, published in Information Research (Vol 22, No 4).
• Hägglund, M., Moll, J., Åhlfeldt, R-M., & Scandurra, I. (2018). Timing it right – patients’ online access to their record notes in Sweden. Studies in Health Technology and Informatics 247: 336-340.
• Hägglund, M., Scandurra, I., (2017) A Socio-Technical Analysis of Patient Accessible Electronic Health Records. Stud Health Technol Inform. 2017;244:3-7.
  PMID: 29039366
• Grünloh, C., Hallewell Haslwanter, J.D., Kane, B., Lee, E., Lind, T., Moll, J., Rexhepi, H., Scandurra, I., (2017) Using Critical Incidents in Workshops to Inform eHealth Design. INTERACT 2017, Part I, LNCS 10513, pp. 364–373, 2017. DOI: 10.1007/978-3-319-67744-6 24
• Hägglund, M., Scandurra, I. (2017) Patients’ Online Access to Electronic Health Records: Current Status and Experiences from the Implementation in Sweden. Stud Health Technol Inform. 2017;245:723-727.PMID:29295193
• Scandurra I, Pettersson M, Hagglund M. (2017)When do people read their health record? – Analysis of usage data of a national eHealth service giving patients access to their Electronic Health Record. Poster paper in Informatics for health: Connected Citizen-Led Wellness and Population Health (MIE2017) Vol 235. Manchester, UK, April 2017 ISBN online: 978-1-61499-753-5
• Scandurra I, Pettersson M, Eklund B, Lyttkens L. (2017)Analysis of the Updated Swedish Regulatory Framework of the Patient Accessible Electronic Health Record in Relation to Usage Experience. Stud Health Technol Inform 2017;245:798-802 http://ebooks.iospress.nl/volumearticle/48261
• Hägglund M, Heinze O, Pobiruchin M, Pohl AL, Schreiwies B, Scandurra I, Wiesner M: Report in the HEC (2016) Workshop: Opportunities and Challenges of Consumer-Centric eHealth Services – An Interdisciplinary Workshop. Dec 2016. DOI: 10.13140/RG.2.2.16767.82081 https://gmds.mi.hs-heilbronn.de/pg-chi/images/0/02/HEC_Workshop_Consumer-centric_eHealth_Services.pdf
• Cajander, Å., Grünloh, C., Lind, T. & Scandurra, I. (2016) Designing eHealth Services for Patients and Relatives: Critical Incidents and Lessons to Learn. Workshop at the 9th Nordic Conference on Human-Computer Interaction, NordiCHI 2016, Oct 23-27, Gothenburg, Sweden.
• Moll, J. (2016). Making a case for easily accessible electronic health records – A patient perspective on lack of availability of health information in critical situations. Workshop on Designing E-Health Services For Patients & Relatives – Critical Incidents and Lessons to Learn, NordiCHI 2016 (Göteborg, Sweden, October 2016).
• Rexhepi H, Grünloh C, Cajander Å, and Scandurra I. (2016). “Please Do Not Confuse Your Google Search With My Medical Degree”?! How Accessing EHRs and Google can Support Information Needs and Increase Understanding for Patients and Relatives. Position paper in NordiCHI’16, Gothenburg, October 2016. Accessible through https://www.researchgate.net/publication/308886578_Please_Do_Not_Confuse_Your_Google_Search_With_My_Medical_Degree_How_Accessing_Electronic_Health_Records_EHRs_and_Online_Searches_can_Support_Information_Needs_and_Increase_Understanding_for_Patients
• Scandurra, I., Lyttkens, L., Eklund, B. (2016) Implications of Swedish National Regulatory Framework of the Patient Accessible Electronic Health Record. Oral Presentation. Medical Informatics Europe (MIE 2016), in conjunction with Health – Exploring Complexity: An Interdisciplinary Systems Approach (HEC 2016), August 28 – September 2, Munich, Germany.
• Grünloh, C., Rexhepi, H., Cajander, Å., Åhlfeldt, R-M., Myreteg, G., Huvila, I. (2016) Patient Empowerment Meets Concerns for Patients – a Study of Patient Accessible Electronic Health Records in Sweden. Oral Presentation. Medical Informatics Europe (MIE 2016), in conjunction with Health – Exploring Complexity: An Interdisciplinary Systems Approach (HEC 2016), August 28 – September 2, Munich, Germany. In: Health—exploring complexity: an interdisciplinary systems approach HEC2016, Eva Grill, Martin Müller, and Ulrich Mansmann (Eds.). Vol. 31. S71. DOI:http://dx.doi.org/10.1007/s10654-016-0183-1
• Scandurra I, Jansson A, Forsberg-Fransson M-L., Ålander T. (2015) Is ‘Patient’s Online Access to Health Records’ a Good Reform? – Opinions from Swedish Healthcare Professionals Differ.  Accepted for HCist 2015, Vilamoura, PT, Oct 7-9, 2015. In: Procedia Computer Science, Volume 64, Pages 964–968, PROCS6824. PII: S1877-0509(15)02749-0 DOI: 10.1016/j.procs.2015.08.614. http://www.sciencedirect.com/science/article/pii/S1877050915027490.
• Scandurra, I. & Ålander, T. (2015) Registered Nurses’ Opinions of Patient Access to Electronic Health Records in Sweden – a Nationwide Survey. Oral presentation. Medicine 2.0: Social Media, Mobile Apps, and Internet/Web 2.0 in Health, Medicine and Biomedical Research, October 9-10, Malaga, Spain.
• Cajander, Å., Grünloh C, & Rexhepi, H. (2015). Worlds Apart – Doctors’ Technological Frames and Online Medical Records. Adjunct proceedings of 15th IFIP TC.13 International Conference on Human-Computer Interaction (INTERACT); 2015 Sept 14-18; Bamberg, Germany. University of Bamberg Press; 2015. https://opus4.kobv.de/opus4- bamberg/frontdoor/index/index/docId/25644 Archived at: http://www.webcitation.org/6fZMofuHb
• Ålander T. & Scandurra, I. (2015) Experiences of Healthcare Professionals to the Introduction in Sweden of a Public eHealth Service: Patients’ Online Access to their Electronic Health Records. MEDINFO 2015: eHealth-enabled Health,The 15th World Congress on Health and Biomedical Informatics, August 19-23, São Paulo city, Brazil
• Scandurra, I. & Ålander T. (2015) Is Access to eHealth Records Important for Patients? – Opinions of Healthcare Personnel. Poster paper in Medinfo2015: eHealth – enabled Health, The 15th World Congress on Health and Biomedical Informatics, August 19-23, São Paulo city, Brazil, Stud Health Technol Inform. 2015;216:908 ISBN online: 978-1-61499-564-7. DOI 10.3233/978-1-61499-564-7-908.
• Rexhepi, H., Åhlfeldt, R-M., Cajander, Å. & Huvila, I. (2015) Cancer Patients’ Attitudes and Experiences of Online Medical Records. Proceedings of the 17th International Symposium on Health Information Management Research (ISHIMR 2015),24-26 June 2015 (pp. 19-25) York, UK. ISSN 2048-4712 (Print).
• Erlingsdottir, G., Lindholm, C., Sandberg, H. (2015) Media and Transgression: International conference. Lund University. 
• Rexhepi, H., Åhlfeldt, R-M. & Persson, A. (2015) Challenges and opportunities with information system support for healthcare processes – A healthcare practitioner perspective. Proceedings of the 8th IADIS International Conference on Information Systems 2015, March 14–16, Madeira, Portugal. Accepted for publication
• Rexhepi, H. (2015) Supporting Evidence Based Medicine – A Prototype for Future Healthcare Information Systems. Proceedings of the 8th IADIS International Conference on Information Systems 2015, March 14–16, Madeira, Portugal. Accepted for publication.
• Ålander T, Åhlfeldt, RM. & Huvila,  I. (2014) Experiences of a Patient Portal with Access During 9 Years to the Medical Records, in Primary Care. Poster. Medicine 2.0: Social Media, Mobile Apps, and Internet/Web 2.0 in Health, Medicine and Biomedical Research, October 9-10, Malaga, Spain.
• Erlingsdottir G., C. Lindholm & T. Ålander (2014) eHealth services, patient empowerment and professional accountability. An empirical study on the changing patient doctor relationship in the digital world,  paper for the International EIASM Public Sector Conference in Edinburgh, 2-4 September 2014.
• Cajander, Å., Janols, R. & Eriksson, E. (2014). On the Establishment of User-Centred Perspectives. Proceedings of the 8th Nordic Conference on Human-Computer Interaction, NordiCHI 2014, October 23-27. Helsinki, Finland.
• Larusdottir, M., Cajander Å. & Simader, M. (2014). Continuous Improvement in Agile Development Practice – The Case of Value and Non-Value Adding Activities. HCSE 2014, September 16-18, Paderborn, Germany.
• Åhlfeldt, R.-M. & Huvila, I. (2014). Patient Safety and Patient Privacy When Patient Reading Their Medical Records, in Kaija Saranto; Maaret Castrén; Tiina Kuusela; Sami Hyrynsalmi & Stina Ojala, ed., Safe and Secure Cities : 5th International Conference on Well-Being in the Information Society, WIS 2014. Turku, Finland, August 18-20, 2014, Proceedings, Springer, Heidelberg, pp. 230-239.
• Holgersson, J. & Söderström, E. (2014). Experiences from and attitudes towards applying user participation in public e-service development. Accepted to the 10th International Conference on Web Information Systems and Technologies (WEBIST).
• Scandurra, I., Åhlfeldt, R-M., Cajander, Å (2014). Towards National Deployment of Online Medical Records and eHealth Services. ePublished in “Vitalis14 PReP? (gupea.ub.gu.se).
• Scandurra, I. & Sjölinder, M. (2013). The Digital Seniors – Interactive eHealth Service Development with Old Citizens. In proceedings of the Medicine 2.0-13 congress, London.
• Cajander, Å., Larusdottir, M. & Gulliksen, J. (2013). Existing but not Explicit – The User Perspective in Scrum Projects in Practice. INTERACT, Cape Town, South Africa.
• Scandurra, I., Åhlfeldt, R.-M., Persson, A. & Hägglund, M. (2013). Challenges in applying a Participatory Approach in a Nation-wide project – The case of Usability of Swedish eHealth Systems 2013 in Proceedings of Past History and Future Challenges of Human Work Interaction Design (HWID) INTERACT workshop 2013 – 14th IFIP TC13, Cape Town, South Africa, p 34-39. ISBN: 978-620-58037-3
• Scandurra, I., Holgersson, J., Lind, T. & Myreteg, G. (2013). Development of Novel eHealth Services for Citizen Use – Current System Engineering vs. Best Practice in HCI. In INTERACT 2013 LNCS Proceedings, Cape Town, South Africa.
• Erlingsdottir, G. & Lindholm, C. (2013). “Because we can! Deployment of eHealth services in Uppsala County”. NFF (Nordic association of business administration) conferens in Reykjavik.
• Scandurra, I., Hägglund, M. & Åhlfeldt, R.-M. (2013). Experiences of Novel e-Health Services for Patients – Pros, Cons and Future Challenge. Accepted proposal for workshop in Medinfo 2013. Copenhagen, Denmark.
• Huvila, I., Daniels, M., Åhlfeldt, R.-M. & Cajander, Å. (2013). Experiences and Attitudes of Patients Reading their Medical Records differences between readers and recurrent readers. Information: Interactions and Impact, Aberdeen.
• Ålander, T. & Hamne, A. (2013). Patients reading their medical records online- implications for the doctor. WONCA World conference in Prague, Oral presentation.
• Ålander, T. (2013). Doctors opinions of patients’ online access to their electronic medical records. WONCA World conference in Prague, Poster presentation.
• Åhlfeldt, R.-M., Krasniqi, H. & Persson, A. (2013). Supporting Active Patient and Healthcare Collaboration – A Prototype for Future Healthcare Information Systems. Submitted to the 16th International Symposium on Health Information Management Research (ISHIMR 2013). Halifax, Canada.
• Scandurra, I., Åhlfeldt, R.-M., Persson, A. & Hägglund, M. (2013). Building Usability into National eHealth Strategies, an Action Research Approach. In proceedings of the 4th-international workshop on Infrastructures for Healthcare: Action Research, Intervention and Particpatory Design 2013. Tromsö, Norway.
• Huvila, I. & DOME project. (2013). Deployment of Online Medical Records and e-Health Services. ASIS&T European Workshop, Åbo.
• Holgersson, J. & Karlsson, F. (2012), Understanding business employees’ conditions for participating in public e-service development. ECIS 2012 Proceedings, paper 24, Barcelona, Spain.
• Hägglund, M., Scandurra, I. & Koch, S. (2012). Supporting Citizen-centred Care for Seniors – Experiences from Two Swedish Research Projects In Proceedings of 25th IEEE International Symposium on Computer-Based Medical Systems (CBMS).
• Holgersson, J. & Karlsson, F. (2011). Exploring citizens’ possibilities to participate in public e-service development, In Janssen et al. (eds.), In the joint proceedings of Ongoing Research and Projects of IFIP EGOV and ePart 2011, Delft, The Netherlands, pp. 83-91.
• Krasniqi, H., Åhlfeldt, R.-M. & Persson, A. (2011). Patients’ experiences of communicating with healthcare – an information exchange perspective. In Proceedings of the 15th International Symposium for Health Information management Research (ISHIMR 2011), Zurich, pp. 241-251, ISBN 978-0-9559283-1-4.

Theses

• Lind, Thomas (2017). Inertia in Sociotechnical Systems : On IT-related Change Processes in Organisations (PhD dissertation). Uppsala University, ISBN 978-91-513-0010-8.
• Grünloh, Christiane (2016) To Share or Not to Share? Expectations of and Experiences with eHealth Services that Allow Users Access to their Health Information. Licentiate Dissertation, School of Computer Science and Communication, KTH Royal Institute of Technology, ISBN 978-91-7595-965-8.
• Rexhepi, Hanife (2015) Improving healthcare information systems – A key to evidence based medicine, Informatics. Licentiate Dissertation, ISBN 978-91-981474-7-6.
• Lind, Thomas (2014). Change and resistance to change in health care: Inertia in sociotechnical systems. (Licentiate thesis). IT licentiate theses, Department of Information Technology, 2014-005. Uppsala University.
• Holgersson, Jesper (2014) User participation in public e-service development: Guidelines for including external users, Informatics Doctoral Dissertation, ISBN 978-91-981474-5-2.

Other publications

• Hägglund, M.(2021). Nordic countries lead new initiative on patient access to EHRs. BMJ. British Medical Journal (International Ed.)
• Blease, C., DesRoches, C., Hägglund, M., Hayden, A., Rexhepi, H. et al.(2021). Knowledge, power, and patients:: The ethics of open notes. Journal of Medical Ethics
• Hägglund, M., DesRoches C., Petersen C., Scandurra I. (2019) Patients’ access to health records. Editorial the BMJ, October 2019.
• Cajander, Å. & Åhlfeldt, R-M. (2016) Journal via nätet– delaktighet för patienterna och oro hos personalen. Fridholm & Partners, juni 2016.
• Rexhepi, H., Cajander, Å., Åhlfeldt, R-M & Huvila, I. (2015) Cancerpatienter och användning av journal via nätet. Tillgänglig på Internet (In Swedish): http://his.diva-portal.org/smash/get/diva2:874822/FULLTEXT01.pdf
• Scandurra, I. (2013) eHälsosystemens användbarhet 2013, Rapport på uppdrag av Socialdepartementet, available as of 14 June 2013. [pdf]
• Cajander, Å., Erlingsdottir, G. & Åhlfeldt, R-M. (2013). “DOME-projektets forskning är laglig och etisk”, debate in the Swedish paper Läkartidningen, 5 April 2013. [link]
• Lyttkens L. SUSTAINS Intermediate trial evaluation – Uppsala, Report D6.1 v1.1, 14 Jan 2014. SUSTAINS rapport

Presentations and Workshops

• 2019 IT i Vården Dagen
  • Efter 1177-läckan – så kan vårdens informationssäkerhet stärkas
• 2019 VITALIS
  • Presentation about Journalen
• 2018-06-14 Workshop in conjunction with Uppsala Health Summit:
  • Using Data for Better Cancer Treatments
• 2018-04-26 Workshop in conjunction with MIE
  • Using Existing Data for Diagnoses and Treatment of Cancer.
• 2018-04 Workshop in conjunction with MIE
  • Identifying the Need of Self-reported Data and Self-measurements for Diagnosis and Treatment of Cancer.
• 2018-04-25 VITALIS
  • •  JOURNALEN – the latest and greatest (in Swedish)

• 2018 Skånes primärvårds patientsäkerhetsdagar
• 2018 SOI – Konferens om Svensk Omvårdnadsinformatik
  • Journalen 2.0 – utifrån patientens behov
• 2018 SOI – Konferens om Svensk Omvårdnadsinformatik
  • Journalen 2.0 – utifrån patientens behov
• 2017-08 Workshop in conjunction with Medinfo
  • Impact of Patient Accessible EHRs – an Interactive Workshop to Share Experiences and Explore Evaluation Approaches.
• 2017 VITALIS
  • En maxxad tillställning
• 2016-10-23 Workshop in conjunction with NordiCHI
  • Designing eHealth services for patients and relatives: workshop website
• 2016-08-30 Presentation HEC 2016
  • Patient empowerment meets concerns for patients
• 2016-08 Workshop in conjunction with MIE.
  • Opportunities and Challenges of Consumer-centric eHealth Services – An Interdisciplinary Workshop.
• 2015 VITALIS
  • Why do some cancer patients to read their medical records online (In Swedish)
• 2015 Workshop in conjunction with MIE
  • Developing and implementing national eHealth services for patients – an interactive exploration of challenges and potential solutions.
• 2014-19-09 Open Days Bryssels
  • Cancer Patients Accessing their Online Medical Records (In English)
• 2014-10-17: Symposium organised by DOME in Uppsala
  • Video recordings of the presentations (5/6 in Swedish)
  • Slides from Isabella Scandurra’s presentation (Swedish) [pdf]
  • Slides from Hanife Rexhepi’s presentation (Swedish) [pdf]
  • Slides from the IT and Society students’ presentation [pdf]
  • Slides from Ulrika Åkerstedt’s presentation (Swedish) [pdf]

• 2013-04-26: Workshop with reference groups in Stockholm
  • Summary of the workshop (Swedish) [pdf]
  • Slides from the DOME project (Swedish) [pdf]
  • Slides from Leif Lyttkens (Swedish) [pdf]